Ballet Slippers Book Thong Bookmark - Paperbacks - New Release

I have loved this type of bookmark for over a decade. As an avid reader, they became my absolute favorite after I found them in a little neighborhood bookshop. I started making them for friends, and now I’d like to share them with you.Made with waxed linen cord, the thread will resist wear and won’t damage your books. The string will sit snuggly in the pages, keeping your place with style. This thong is made with a silver-tone charm of pointe ballet slippers or shoes. The balancing bead to a sequined, pink ball. Bookmark is long enough for paperbacks, but may not fit some hardcover books. These can be highly personalized! Can’t find exactly what you are looking for? Please contact me, let me know what you’d like, and I’ll do my best to make it happen!

Three years ago Charlee Nelson was singing the ABCs and waving to strangers on grocery store outings with her mom. Family movies show her fearlessly plunging into the swimming pool, dancing with her older brother and sister and making silly faces for the camera. Today she is blind, bedridden and near death. “She’s hanging on, but she’s not doing too well,” Catrina says, cradling her nearly lifeless “baby” girl on the living room couch. Charlee is among 50 Utah children on a waiting list for a nonintoxicating cannabis oil shown to quell seizures in children with untreatable epilepsy. Utah lawmakers are debating a bill, HB105, that would allow families to import the oil from Colorado where marijuana is legal and the “hemp supplement” is produced.

The ballet slippers book thong bookmark - paperbacks bill rests in the Senate and from there needs only Gov, Gary Herbert’s signature before becoming law, But Senate leaders are considering placing more restrictions on the bill that could impede access to the oil, families say, “We’re working through their concerns,” said an optimistic Jennifer May, the mother of a boy with Dravet syndrome and founder of the grass-roots group, Hope 4 Children with Epilepsy, Whatever legislative fix lawmakers settle on will come too late for Charlee..

“We would have loved to try [the oil],” Catrina said. “But I’m still hopeful it will give these other kids a more normal life, that it will take away the pain and seizing and let them sing, dance and ride bikes again.”. Charlee has Batten disease, a rare neurological disorder occurring in fewer than four of 100,000 births in the United States. She lacks an enzyme needed to remove fatty waste from the cells of her brain, eyes, skin and muscles. The accumulating waste leads to seizures, mental impairment, blindness, loss of bodily control and eventually death — a fate cannabis oil can’t change.

There is no cure, said Catrina, who nevertheless wonders whether the oil might have kept the brain-damaging seizures at bay, prolonging and improving her daughter’s quality of life, “We lost a lot of time diagnosing and treating her atonic seizures, Time is what it might have bought us, That’s what it kind of boils down to, time.”, Charlee’s first seizure was in May 2011, Nelson and her husband, Jeff, had flown ballet slippers book thong bookmark - paperbacks to Colorado for a [niece’s] graduation, They had just landed and were grabbing lunch at Popeye’s when Nelson’s sister-in-law called to say Charlee had a seizure and had been taken to the hospital by ambulance..

“We just looked at each other and both of us started to sob,” Catrina recalled. Doctors initially thought it was an isolated event but scheduled testing a week later to be sure. While waiting in her hospital room, Charlee froze and stared at the wall, then fell to the ground. “That was the first seizure I had seen. I broke down and thought, ‘This isn’t happening,’” ” Catrina recalled. For six months they treated Charlee for epilepsy. But when she started tripping on the stairs and having recurrent tremors and shakes, the family renewed testing and discovered a part of her brain was shrinking.

Charlee started having drop, or atonic, seizures, sometimes as many as 200 or 500 a day, “She would just cry for hours at a ballet slippers book thong bookmark - paperbacks time, She couldn’t communicate or tell us if it hurt but I just know she was in pain,” Catrina said, The family tried numerous medicines and a high-fat, ketogenic diet, recommended for nearly all children with seizures, Because doctors had not yet diagnosed Charlee, they didn’t realize fats were the enemy, “She was potty trained but days after starting the diet was wetting her pants,” Catrina said, “We thought, ‘Gosh this seems like it’s making her worse,’ but we felt it was our last hope.”..

Charlee’s eye doctor first noticed the retinal formations that led to her genetically confirmed diagnosis of Batten disease 21 months after her first seizure. By then Charlee could no longer walk or talk and was nearly blind. For her the worst part was over — all the blood tests, spinal taps, skin biopsies and brain monitoring. “She never seemed like she knew something serious was going on because her brain was more like a baby’s by the time it got really bad. She never feared losing her life, which is a blessing I guess,” Catrina said. “In a way it feels like we lost her two years ago.”.

Still, the family resolved to make her final moments count, Last April the Make-A-Wish Foundation flew them to Disney World, “She loved the thrill ride, Splash Mountain, ballet slippers book thong bookmark - paperbacks because even though she couldn’t see, she could feel the motion in her tummy, She was grinning the whole time,” Catrina said, Family and friends have an open invitation to drop by the house, “I just wanted them to not have regrets and to be able to come and hold her and say their goodbyes,” she said..

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